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Strain and its correlates among carers of people with dementia in low-income and middle-income countries. A 10/66 Dementia Research Group population-based survey

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dc.contributor.author Prince, M.
dc.contributor.author Brodaty, H.
dc.contributor.author Uwakwe, R.
dc.contributor.author Acosta, D.
dc.contributor.author Ferri, C.P.
dc.contributor.author Guerra Arteaga, Mariella
dc.contributor.author Huang, Y.
dc.contributor.author Jacob, K.
dc.contributor.author Llibre Rodriguez, J.J.
dc.contributor.author Salas, A.
dc.contributor.author Sosa, A.L.
dc.contributor.author Williams, J.D.
dc.contributor.author Jotheeswaran, A.T.
dc.contributor.author Liu, Z.
dc.date.accessioned 2022-01-18T19:26:44Z
dc.date.available 2022-01-18T19:26:44Z
dc.date.issued 2012
dc.identifier.uri https://hdl.handle.net/20.500.12866/10819
dc.description.abstract Objectives: In a multi-site population-based study in several middle-income countries, we aimed to investigate relative contributions of care arrangements and characteristics of carers and care recipients to strain among carers of people with dementia. Based on previous research, hypotheses focused on carer sex, care inputs, behavioural and psychological symptoms (BPSD) and socioeconomic status, together with potential buffering effects of informal support and employing paid carers. Methods: In population-based catchment area surveys in 11 sites in Latin America, India and China, we analysed data collected from people with dementia and care needs, and their carers. Carer strain was assessed with the Zarit Burden Interview. Results: With 673 care recipient/carer dyads interviewed (99% of those eligible), mean Zarit Burden Interview scores ranged between 17.1 and 27.9 by site. Women carers reported more strain than men. The most substantial correlates of carer strain were primary stressors BPSD, dementia severity, needs for care and time spent caring. Socioeconomic status was not associated with carer strain. Those cutting back on work experienced higher strain. There was tentative evidence for a protective effect of having additional informal or paid support. Conclusions: Our findings underline the global impact of caring for a person with dementia and support the need for scaling up carer support, education and training. That giving up work to care was prevalent and associated with substantial increased strain emphasizes the economic impact of caring on the household. Carer benefits, disability benefits for people with dementia and respite care should all be considered. en_US
dc.language.iso eng
dc.publisher Wiley
dc.relation.ispartofseries International Journal of Geriatric Psychiatry
dc.rights info:eu-repo/semantics/restrictedAccess
dc.rights.uri https://creativecommons.org/licenses/by-nc-nd/4.0/deed.es
dc.subject Humans en_US
dc.subject Major Clinical Study en_US
dc.subject Population Research en_US
dc.subject Age Factors en_US
dc.subject Disease Severity en_US
dc.subject Sex Difference en_US
dc.subject Socioeconomic Factors en_US
dc.subject Latin America en_US
dc.subject South And Central America en_US
dc.subject Review en_US
dc.subject Questionnaires en_US
dc.subject China en_US
dc.subject Interview en_US
dc.subject Sex Factors|Income en_US
dc.subject Analysis Of Variance en_US
dc.subject Caregivers en_US
dc.subject Correlation Analysis en_US
dc.subject Scoring System en_US
dc.subject Lowest Income Group en_US
dc.subject Dementia en_US
dc.subject India en_US
dc.subject Cognitive Defect en_US
dc.subject Developing Countries en_US
dc.subject Epidemiologic Studies en_US
dc.subject Psychological en_US
dc.subject Spouse en_US
dc.subject Stress Psychological en_US
dc.title Strain and its correlates among carers of people with dementia in low-income and middle-income countries. A 10/66 Dementia Research Group population-based survey en_US
dc.type info:eu-repo/semantics/review
dc.identifier.doi https://doi.org/10.1002/gps.2727
dc.subject.ocde https://purl.org/pe-repo/ocde/ford#3.02.24
dc.relation.issn 1099-1166


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