Universidad Peruana Cayetano Heredia

Balancing Indigenous Principles and Institutional Research Guidelines for Informed Consent: A Case Study from the Peruvian Amazon

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dc.contributor.author Sherman, M.
dc.contributor.author Berrang-Ford, L.
dc.contributor.author Ford, J.
dc.contributor.author Lardeau, M.-P.
dc.contributor.author Hofmeijer, I.
dc.contributor.author Cortijo, C.Z.
dc.date.accessioned 2022-01-18T19:26:50Z
dc.date.available 2022-01-18T19:26:50Z
dc.date.issued 2012
dc.identifier.uri https://hdl.handle.net/20.500.12866/10936
dc.description.abstract Background: Current literature emphasizes the need to implement informed consent according to indigenous principles and worldviews. However, few studies explicitly address how informed consent can be effectively and appropriately obtained in indigenous communities in accordance with research ethics guidelines. Methods: This article uses participatory rural appraisal methods to identify and characterize community preferences for informed consent in two indigenous communities in the Peruvian Amazon, using Canadian federal research regulations and McGill University's Research Ethics Board as a case study to examine where institutional ethics guidelines constrain or support culturally appropriate notions of informed consent. Results: The study emphasizes the importance of tailoring informed consent procedures to community circumstances. Although both communities in this case study are located in the Peruvian Amazon, there were important distinctions between them, such as gender dynamics and social structure, which profoundly affected informed consent procedures. It is also important to consider the balance of collectivism and individualism at a community level in order to determine the role of individual and community consent. Conclusion: Research ethics guidelines generally allow for this contextualized approach. However, regulations still have the potential to constrain indigenous informed consent due to content requirements for informed consent forms, limited flexibility for modifications in the field, and requirements for individual consent. en_US
dc.language.iso eng
dc.publisher Taylor and Francis
dc.relation.ispartofseries AJOB Primary Research
dc.rights info:eu-repo/semantics/restrictedAccess
dc.rights.uri https://creativecommons.org/licenses/by-nc-nd/4.0/deed.es
dc.subject Peru en_US
dc.subject Amazonia en_US
dc.subject Ethics en_US
dc.subject Ethics Committees en_US
dc.subject IHACC en_US
dc.subject Indigenous en_US
dc.subject Informed Consent en_US
dc.subject Research en_US
dc.subject Research Subjects en_US
dc.title Balancing Indigenous Principles and Institutional Research Guidelines for Informed Consent: A Case Study from the Peruvian Amazon en_US
dc.type info:eu-repo/semantics/article
dc.identifier.doi https://doi.org/10.1080/21507716.2012.714838
dc.subject.ocde https://purl.org/pe-repo/ocde/ford#3.01.00
dc.relation.issn 2150-7724


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