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Outcomes measured in studies assessing health systems interventions for type 1 diabetes management: A scoping review.

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dc.contributor.author Zafra-Tanaka, Jessica Hanae
dc.contributor.author Del Valle, Adela
dc.contributor.author Bernabé Ortiz, Antonio
dc.contributor.author Miranda, J. Jaime
dc.contributor.author Beran, David
dc.date.accessioned 2023-10-09T17:09:19Z
dc.date.available 2023-10-09T17:09:19Z
dc.date.issued 2023
dc.identifier.uri https://hdl.handle.net/20.500.12866/14235
dc.description.abstract AIMS: Describe the outcomes reported in research on health systems interventions for type 1 diabetes management in comparison to the outcomes proposed by a core outcome set (COS) for this condition, an essential list of outcomes that studies should measure. METHODS: Systematic search of studies published between 2010 and 2021 reporting health systems interventions directed to improve the management of type 1 diabetes using PubMed, EMBASE and CENTRAL. Information on the outcomes was extracted and classified according to a COS: self-management, level of clinical engagement, perceived control over diabetes, diabetes-related quality of life, diabetes burden, diabetes ketoacidosis, severe hypoglycemia, and glycated hemoglobin (HbA1C). RESULTS: 187 studies were included. Most of the studies included either children (n=82/187) or adults (n=82/187) living with type 1 diabetes. The most common outcome measured was HbA1C (n=149/187), followed by self-management (n=105/187). While the least measured ones were diabetes ketoacidosis (n=15/187), and clinical engagement (n=0/187). None of the studies measured all the outcomes recommended in the COS. Additionally, different tools were found to be used in measuring the same outcome. CONCLUSIONS: This study provides a description of what researchers are measuring when assessing health systems interventions to improve type 1 diabetes management. In contrast to a COS, it was found that there is a predominance of clinical-based outcomes over patient-reported outcome measures. en_US
dc.language.iso eng
dc.publisher Wiley
dc.relation.ispartofseries Diabetic Medicine
dc.rights info:eu-repo/semantics/restrictedAccess
dc.rights.uri https://creativecommons.org/licenses/by-nc-nd/4.0/deed.es
dc.subject Core outcome set en_US
dc.subject Health systems outcomes en_US
dc.subject Type 1 diabetes en_US
dc.title Outcomes measured in studies assessing health systems interventions for type 1 diabetes management: A scoping review. en_US
dc.type info:eu-repo/semantics/review
dc.identifier.doi https://doi.org/10.1111/dme.15223
dc.relation.issn 1464-5491


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