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dc.contributor.author | Zafra-Tanaka, Jessica Hanae | |
dc.contributor.author | Del Valle, Adela | |
dc.contributor.author | Bernabé Ortiz, Antonio | |
dc.contributor.author | Miranda, J. Jaime | |
dc.contributor.author | Beran, David | |
dc.date.accessioned | 2023-10-09T17:09:19Z | |
dc.date.available | 2023-10-09T17:09:19Z | |
dc.date.issued | 2023 | |
dc.identifier.uri | https://hdl.handle.net/20.500.12866/14235 | |
dc.description.abstract | AIMS: Describe the outcomes reported in research on health systems interventions for type 1 diabetes management in comparison to the outcomes proposed by a core outcome set (COS) for this condition, an essential list of outcomes that studies should measure. METHODS: Systematic search of studies published between 2010 and 2021 reporting health systems interventions directed to improve the management of type 1 diabetes using PubMed, EMBASE and CENTRAL. Information on the outcomes was extracted and classified according to a COS: self-management, level of clinical engagement, perceived control over diabetes, diabetes-related quality of life, diabetes burden, diabetes ketoacidosis, severe hypoglycemia, and glycated hemoglobin (HbA1C). RESULTS: 187 studies were included. Most of the studies included either children (n=82/187) or adults (n=82/187) living with type 1 diabetes. The most common outcome measured was HbA1C (n=149/187), followed by self-management (n=105/187). While the least measured ones were diabetes ketoacidosis (n=15/187), and clinical engagement (n=0/187). None of the studies measured all the outcomes recommended in the COS. Additionally, different tools were found to be used in measuring the same outcome. CONCLUSIONS: This study provides a description of what researchers are measuring when assessing health systems interventions to improve type 1 diabetes management. In contrast to a COS, it was found that there is a predominance of clinical-based outcomes over patient-reported outcome measures. | en_US |
dc.language.iso | eng | |
dc.publisher | Wiley | |
dc.relation.ispartofseries | Diabetic Medicine | |
dc.rights | info:eu-repo/semantics/restrictedAccess | |
dc.rights.uri | https://creativecommons.org/licenses/by-nc-nd/4.0/deed.es | |
dc.subject | Core outcome set | en_US |
dc.subject | Health systems outcomes | en_US |
dc.subject | Type 1 diabetes | en_US |
dc.title | Outcomes measured in studies assessing health systems interventions for type 1 diabetes management: A scoping review. | en_US |
dc.type | info:eu-repo/semantics/review | |
dc.identifier.doi | https://doi.org/10.1111/dme.15223 | |
dc.subject.ocde | https://purl.org/pe-repo/ocde/ford#3.02.18 | |
dc.subject.ocde | https://purl.org/pe-repo/ocde/ford#3.02.27 | |
dc.relation.issn | 1464-5491 |
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