Universidad Peruana Cayetano Heredia

Child, Caregiver, and Health Care Provider Perspectives and Experiences Regarding Disclosure of HIV Status to Perinatally Infected Children in Lima, Peru

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dc.contributor.author Baker, Amira Noori
dc.contributor.author Bayer, Angela Marie
dc.contributor.author Kolevic, Lenka
dc.contributor.author Najarro, Lizzete
dc.contributor.author Viani, Rolando Mario
dc.contributor.author Deville, Jaime Gerardo
dc.date.accessioned 2018-11-30T02:09:31Z
dc.date.available 2018-11-30T02:09:31Z
dc.date.issued 2018
dc.identifier.uri https://hdl.handle.net/20.500.12866/4025
dc.description.abstract BACKGROUND: Despite recommendations for disclosure of HIV status to children living with HIV (CLHIV), fewer than half of CLHIV at the Instituto Nacional de Salud del Niño (INSN) in Lima, Peru, have had disclosure. How and when the disclosure process for CLHIV should take place in Peru has not been studied. METHODS: We conducted a qualitative study at INSN to explore perceptions and experiences of 6 health care providers (HCPs), 14 disclosed and nondisclosed CLHIV (8-17 years), and their 14 caregivers regarding knowledge of illness, disclosure of HIV status, and appropriate disclosure approaches. RESULTS: Disclosed children wanted to be told their diagnosis earlier. Nondisclosed children expressed frustration taking medications. Caregivers and HCPs discussed motivations to disclose, including educating, honesty, improving medication adherence, and preventing secondary transmission. CONCLUSION: Culturally appropriate guidelines and training for HCPs and caregivers are needed to support disclosure of children's HIV status and ongoing support for CLHIV. en_US
dc.language.iso eng
dc.publisher Wiley
dc.relation.ispartofseries Journal of the International AIDS Society
dc.rights info:eu-repo/semantics/restrictedAccess
dc.rights.uri https://creativecommons.org/licenses/by-nc-nd/4.0/deed.es
dc.subject Peru en_US
dc.subject HIV disclosure en_US
dc.subject pediatric HIV en_US
dc.subject resource-limited country en_US
dc.subject vertical HIV transmission en_US
dc.title Child, Caregiver, and Health Care Provider Perspectives and Experiences Regarding Disclosure of HIV Status to Perinatally Infected Children in Lima, Peru en_US
dc.type info:eu-repo/semantics/article
dc.identifier.doi https://doi.org/10.1177/2325957417752257
dc.subject.ocde https://purl.org/pe-repo/ocde/ford#3.03.08
dc.relation.issn 1758-2652


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