Universidad Peruana Cayetano Heredia

An exploration into caring for a stroke-survivor in Lima, Peru: Emotional impact, stress factors, coping mechanisms and unmet needs of informal caregivers

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dc.contributor.author Pesantes Villa, María Amalia
dc.contributor.author Brandt, Lena R.
dc.contributor.author Ipince, Alessandra
dc.contributor.author Miranda, J. Jaime
dc.contributor.author Diez-Canseco Montero, Francisco
dc.date.accessioned 2019-01-25T15:02:16Z
dc.date.available 2019-01-25T15:02:16Z
dc.date.issued 2016
dc.identifier.uri https://hdl.handle.net/20.500.12866/4597
dc.description.abstract INTRODUCTION: Understanding local complexities and challenges of stroke-related caregiving are essential to develop appropriate interventions. Our study aimed to characterize the impact of post-stroke care among caregivers in a setting of transitioning economy. MATERIALS AND METHODS: Qualitative study based on in-depth interviews with primary caregivers of stroke survivors in Lima, Peru. Transcribed data was organized into the emotional impact of caregiving, main stress factors and coping mechanisms to deal with the caregiving role, as well as the unmet needs of caregivers. RESULTS: We interviewed twelve caregivers, mean age 52.5 years, 8/12 were females, who were either the spouse or child of the stroke survivor. Stroke patients had a median age of 70 years, range 53-85 years. All participants reported having experienced emotional stress and depressive symptoms as a result of caregiving. Although most had family support, reduced social activities and added unanticipated financial burdens increased caregiver's stress. None of the caregivers had received training in post-stroke care tasks after the patient's discharge and only a few had received some psychological support, yet almost all expressed the need to see a professional to improve their mental health. Keeping a positive attitude towards their relative's physical post-stroke condition was a key coping mechanism. CONCLUSIONS: In the absence of structured institutional responses, family members endure with the provision of care for stroke survivors, a task escorted by major emotional, financial, and social strains. This burden could be prevented or curtailed if caregivers were to be targeted by interventions providing psychological and financial support, together with basic training on post-stroke care. en_US
dc.language.iso eng
dc.publisher Elsevier
dc.relation.ispartofseries eNeurologicalSci
dc.rights info:eu-repo/semantics/restrictedAccess
dc.rights.uri https://creativecommons.org/licenses/by-nc-nd/4.0/deed.es
dc.subject caregivers en_US
dc.subject coping en_US
dc.subject depressive symptoms en_US
dc.subject Peru en_US
dc.subject qualitative research en_US
dc.subject Stroke en_US
dc.title An exploration into caring for a stroke-survivor in Lima, Peru: Emotional impact, stress factors, coping mechanisms and unmet needs of informal caregivers en_US
dc.type info:eu-repo/semantics/article
dc.identifier.doi https://doi.org/10.1016/j.ensci.2016.11.004
dc.subject.ocde https://purl.org/pe-repo/ocde/ford#3.02.25
dc.relation.issn 2405-6502


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