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Developing consensus measures for global programs: lessons from the Global Alliance for Chronic Diseases Hypertension research program

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dc.contributor.author Riddell, Michaela A.
dc.contributor.author Edwards, Nancy
dc.contributor.author Thompson, Simon R.
dc.contributor.author Bernabe-Ortiz, Antonio
dc.contributor.author Praveen, Devarsetty
dc.contributor.author Johnson, Claire
dc.contributor.author Kengne, Andre P.
dc.contributor.author Liu, Peter
dc.contributor.author McCready, Tara
dc.contributor.author Ng, Eleanor
dc.contributor.author Nieuwlaat, Robby
dc.contributor.author Ovbiagele, Bruce
dc.contributor.author Owolabi, Mayowa
dc.contributor.author Peiris, David
dc.contributor.author Thrift, Amanda G.
dc.contributor.author Tobe, Sheldon
dc.contributor.author Yusoff, Khalid
dc.date.accessioned 2019-01-25T15:18:33Z
dc.date.available 2019-01-25T15:18:33Z
dc.date.issued 2017
dc.identifier.uri https://hdl.handle.net/20.500.12866/4634
dc.description.abstract BACKGROUND: The imperative to improve global health has prompted transnational research partnerships to investigate common health issues on a larger scale. The Global Alliance for Chronic Diseases (GACD) is an alliance of national research funding agencies. To enhance research funded by GACD members, this study aimed to standardise data collection methods across the 15 GACD hypertension research teams and evaluate the uptake of these standardised measurements. Furthermore we describe concerns and difficulties associated with the data harmonisation process highlighted and debated during annual meetings of the GACD funded investigators. With these concerns and issues in mind, a working group comprising representatives from the 15 studies iteratively identified and proposed a set of common measures for inclusion in each of the teams' data collection plans. One year later all teams were asked which consensus measures had been implemented. RESULTS: Important issues were identified during the data harmonisation process relating to data ownership, sharing methodologies and ethical concerns. Measures were assessed across eight domains; demographic; dietary; clinical and anthropometric; medical history; hypertension knowledge; physical activity; behavioural (smoking and alcohol); and biochemical domains. Identifying validated measures relevant across a variety of settings presented some difficulties. The resulting GACD hypertension data dictionary comprises 67 consensus measures. Of the 14 responding teams, only two teams were including more than 50 consensus variables, five teams were including between 25 and 50 consensus variables and four teams were including between 6 and 24 consensus variables, one team did not provide details of the variables collected and two teams did not include any of the consensus variables as the project had already commenced or the measures were not relevant to their study. CONCLUSIONS: Deriving consensus measures across diverse research projects and contexts was challenging. The major barrier to their implementation was related to the time taken to develop and present these measures. Inclusion of consensus measures into future funding announcements would facilitate researchers integrating these measures within application protocols. We suggest that adoption of consensus measures developed here, across the field of hypertension, would help advance the science in this area, allowing for more comparable data sets and generalizable inferences. en_US
dc.language.iso eng
dc.publisher BioMed Central
dc.relation.ispartof urn:issn:1744-8603
dc.rights info:eu-repo/semantics/restrictedAccess
dc.rights.uri https://creativecommons.org/licenses/by-nc-nd/4.0/deed.es
dc.subject Humans en_US
dc.subject Hypertension en_US
dc.subject Consensus en_US
dc.subject Consensus Measures en_US
dc.subject Global Health en_US
dc.subject Hypertension en_US
dc.subject Implementation en_US
dc.subject Implementation Context en_US
dc.subject Low and middle income countries en_US
dc.subject Chronic Disease/therapy en_US
dc.subject Cooperative Behavior en_US
dc.subject Research Personnel en_US
dc.title Developing consensus measures for global programs: lessons from the Global Alliance for Chronic Diseases Hypertension research program en_US
dc.type info:eu-repo/semantics/article
dc.identifier.doi https://doi.org/10.1186/s12992-017-0242-8
dc.subject.ocde https://purl.org/pe-repo/ocde/ford#3.02.00 es_PE
dc.subject.ocde https://purl.org/pe-repo/ocde/ford#3.03.05

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