DSpace Repository

Research priorities in multiple sclerosis in Latin America: A multi-stakeholder call to action to improve patients care: Research priorities in MS in LATAM

Show simple item record

dc.contributor.author Rojas, Juan I.
dc.contributor.author Carnero-Contentti, Edgar
dc.contributor.author Abad, Patricio
dc.contributor.author Aguayo, Adriana
dc.contributor.author Alonso, Ricardo
dc.contributor.author Bauer, Johana
dc.contributor.author Becker, Jefferson
dc.contributor.author Bustos, Andrea K.
dc.contributor.author Carcamo, Claudia A.
dc.contributor.author Carra, Adriana
dc.contributor.author Correa-Díaz, Edgard P.
dc.contributor.author Correale, Jorge
dc.contributor.author Cristiano, Edgardo
dc.contributor.author Díaz, Alejandro J.
dc.contributor.author Fernández-Liguori, Nora
dc.contributor.author Flores, Jose
dc.contributor.author Fruns, Manuel
dc.contributor.author Garcea, Orlando
dc.contributor.author Giachello, Susana M.
dc.contributor.author Godoy, Melisa D.
dc.contributor.author Gracia, Fernando
dc.contributor.author Hamuy, Victor F.
dc.contributor.author Henestroza, Paula R.
dc.contributor.author Navarra, Javier A.
dc.contributor.author Navas, Carlos
dc.contributor.author Patrucco, Liliana
dc.contributor.author Pérez-Bruno, Magdalena
dc.contributor.author Prato, Andrea S.
dc.contributor.author Rivera, Víctor M.
dc.contributor.author Rosa-Martínez, Alma R.
dc.contributor.author Vanotti, Sandra
dc.contributor.author Vazquez, Macarena
dc.contributor.author Vizcarra-Escobar, Darwin
dc.contributor.author Ysrraelit, Maria C.
dc.contributor.author Alonso-Serena, Marina
dc.date.accessioned 2021-06-08T15:46:14Z
dc.date.available 2021-06-08T15:46:14Z
dc.date.issued 2021
dc.identifier.uri https://hdl.handle.net/20.500.12866/9506
dc.description.abstract As human and economic resources are limited, especially in Latin America (LATAM), it is important to identify research priorities to improve multiple sclerosis (MS) patients care in the region. The objective was to generate a multidisciplinary consensus on research priorities in MS for patients care in LATAM by involving healthcare professionals and MS patient associations. METHODS: consensus was reached through a four-step modified Delphi method designed to identify and rate research priorities in MS in LATAM. The process consisted of two qualitative assessments, a general ranking phase and a consensus meeting followed by a more detailed ranking phase RESULTS: a total of 62 participants (35 neurologists, 4 nurses, 12 kinesiologists, 7 neuropsychologists and 4 patient association members) developed the process. At the final ranking stage following the consensus meeting, each participant provided their final rankings, and the top priority research questions were outlined. 11 research priorities were identified focusing on healthcare access, costs of the disease, physical and cognitive evaluation and rehabilitation, quality of life, symptoms management, prognostic factors, the need of MS care units and patient's management in emergencies like COVID-19. CONCLUSION: this work establishes MS research priorities in LATAM from multiple perspectives. To pursue the actions suggested could launch the drive to obtain information that will help us to better understand the disease in our region and, especially, to better care for affected patients en_US
dc.language.iso eng
dc.publisher Elsevier
dc.relation.ispartofseries Multiple Sclerosis and Related Disorders
dc.rights info:eu-repo/semantics/restrictedAccess
dc.rights.uri https://creativecommons.org/licenses/by-nc-nd/4.0/deed.es
dc.subject Latin America en_US
dc.subject Research en_US
dc.subject Multiple sclerosis en_US
dc.subject Priorities en_US
dc.title Research priorities in multiple sclerosis in Latin America: A multi-stakeholder call to action to improve patients care: Research priorities in MS in LATAM en_US
dc.type info:eu-repo/semantics/article
dc.identifier.doi https://doi.org/10.1016/j.msard.2021.103038
dc.subject.ocde https://purl.org/pe-repo/ocde/ford#3.02.25
dc.relation.issn 2211-0356


Files in this item

Files Size Format View

There are no files associated with this item.

This item appears in the following Collection(s)

Show simple item record

info:eu-repo/semantics/restrictedAccess Except where otherwise noted, this item's license is described as info:eu-repo/semantics/restrictedAccess

Search DSpace


Browse

My Account

Statistics